Thursday, 21 October 2010

Heart Ache & Love

So many amazing parents.
So many wonderful posts and comments on the sad news from the D-community these past days.
You all know what I am referring to.
In all honesty I can't add anything to the eloquence of Meri, Reyna or Jen.
I have cried for this family I don't know. Their reality is one we all dread, one we all know is a possibility.
I accept this disease in our lives.
I will never like it.
Any time it wants to head out the door is fine by me.
And yet it has brought amazing, truly amazing, people into my life.
People I am so so glad to have.
It has also made me aware of my luck and so very grateful for my life.
I would like to add one more thought to our sadness over this loss and it is this:
Take a breath. Cry for a while. Then, head up and look to today and this moment. Letting the fear rule us is not an option because then D steals every moment from us.
And that is not an option either.
My love and respect to you all for ... well, for it all.
For the love and tenacity you show in the face of the D-Beast day in, day out.
For being there for me when it all feels too much.
Cyber hugs to you all and all your little sprogs as well.


  1. It's been hard for me to get on the computer for the past 2 days. I've had to do it in small doses....there's so much sadness....I have to face it in small doses.

    So thankful for every day that our children wake up healthy, happy, and ready to take on the world.

  2. OH JULES!!! I love you and your "sprog"?, as well! I agree. I am ready to continue educating and advocating while united with all of you guys and gals in the DOC.


  3. Blessings my faraway friend. Blessings.

  4. Thank you for this. I'm taking a breath and moving forward now. Once more unto the breach, dear friends, once more.